The CanVasc website

For physicians

Vasculitis Clinical Research Consortium (VCRC)

The Vasculitis Clinical Research Consortium is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of vasculitis. The website contain medical information for physicians, health care providers but also patients.

French Vasculitis Study Group (FVSG) -- site under revision (link inactivated)

The FVSG (French Vasculitis Study Group) is a non-profit association created in 1981 by Prof. Loïc Guillevin. The FVSG's goals in the field of systemic vasculitides are to aid and promote research, diffuse updated information to doctors and patients, organize and coordinate therapeutic trials, and compile a register of doctors and investigators working in the field of vasculitis.

The Johns Hopkin Vasculitis Center WebSite

The purpose of this Website is mainly to provide information about vasculitis for patients, including easy-to-print booklets on each of the main vasculitides, but physicians and research coordinators may also find a lot of useful information and practical tools.

Cleveland Clinic CME Website - Vasculitis

The Cleveland Clinic Center for Continuing Education has been committed to sharing a wealth of knowledge with physicians, nurses, and other medical professionals across the country and all over the world for more than 75 years. This website contains rich educational material and updates on vasculitis and vasculitis research.

RheumInfo.com

RheumInfo.com is website developped by Dr. Andy Thompson & Marlene Thompson (London, ON) to provide free, honest, accurate, and reliable information for patients and physicians dealing with rheumatic disease. Many simple easy-to-use booklets on treatment, which can be given to help patients manage their treatment on a daily basis, are dowloadable.

For patients (in addion to the 3 websites listed just above)

Join the VCRC patient registry

As part of the VCRC network, we strongly suggest and incite our patients to register to this scientific international registry (using online form or by faxing the registration form). By enrolling, you, as a patient, accept to be contacted when and if there is a study or simple survey on vasculitis in which you could participate (those studies will ONLY be VCRC approved and scientific studies or surveys).

Arthritis Research Foundation

The Arthritis Research Foundation aims at raising, managing and investing funds for arthritis and related autoimmune diseases (like vasculitis) research conducted by researchers from labs and clinics across University Health Network (UHN) in Toronto (including the founders of CanVasc). Because CanVasc do not accept direct donations at present, one easy way to support our researches can be through donations to this Foundation. (Donations to the patient support groups listed below and/or directly to the Division in which you are followed for your vasculitis can be another option, if you are willing to support vasculitis research and/or CanVasc).

Patient support groups

Vasculitis Foundation Canada

Vasculitis Foundation Canada mission is to encourage and support research efforts for the cause and cure for all forms of Vasculitis.

Vasculitis Foundation

The Vasculitis Foundation works to support positive change in the lives of people who live with vasculitis.

Churg Strauss Syndrome Association

The Churg Strauss Syndrome Association is a nonprofit organization dedicated to supporting and educating patients and their families who are afflicted with Churg Strauss Syndrome. The CSSA works toward raising public awareness about CSS and provides assistance in understanding the disease and treatment process.

Wegener Info and other Vasculitides

The French patient support group.

This Web Page was updated the 31 January 2012 by Dr Christian Pagnoux